Shabby Miss Jenn

Friday, 23 July 2010

news news news...

ever sit at your pc knowing you want to update your blog, knowing you need to update your blog, knowing the things you want to update it with and then simply sitting at your desk trying to find the right words to say and not really getting very far with it at all? yeh thought and me both!!!

so i'll start with some pretty awesome news that i can share with you all, yep the very same news i've been promising to let you know for a little while now and can finally do so. last night was BAAG's - bendigo autism asperger's group's AGM and last night i was officially voted in as!!!!!

i had been approached about 2 months ago by BAAG and asked if i would like to take this onboard which was pretty darn overwhelming and daunting at the time but wow what a privilege and honour to be asked and  take on this very worthwhile and incredible role. i mean this is huge and although i wanted to get my toes a little wet in the shallow waters, there's nothing like jumping in the deep and all!!!!

as a parent of 4 teenagers...3 of them with autism and other disorders/disabilities, i have a very real passion and drive to understand, learn, advocate, help and support my own children but then to take that and work  within the wider community and do the very same thing with individuals, families, organisations, services and professionals that is something pretty incredible and very much a privilege.

i believe that we can make a difference to bring about the much needed change for those who have a disability and those that are impacted by one if we continue to work together to bring about the necessary and vital needs of each individual as one size no longer fits all. much work has already been done but there is still so much more to do.....acknowledgment, acceptance and understanding are really critical because it's the glimmer of hope that allows us to move forward one tiny baby step at a time, it's the glimmer of hope that allows us to get out of bed in the morning exhausted to push through another day because our loved ones need us too and it's the leap of faith that we take to push through the constant knockdowns and negative boundaries society has placed upon us because many simply don't "get it".

together we can make a difference!!!!

Wednesday, 7 July 2010

as promised...

yep i did promise some pics of the new car that is not quite 2 weeks old...that is 2 weeks old in newness to us.......and have i told you it's a dream to drive. yup still feels a little surreal but we're trying real hard to make it feel more real. one thing i do have to say it is i love love love driving it. i love love love looking at it and i love love love the fact that it belongs to me....oh and the family hehehehe. anyhoo here ya go and thanks for your patience cause i know you've all been waiting anxiously to see it.....haven't you?!!!

ok so here she is and we've called her bill...pretty sweet ride hey!! bill is a 2008/2009 holden commodore omega and an absolute dream to drive. it didn't come with tinted windows when we first purchased her but before we brought her home we asked our local holden dealer to tint the windows as dark as legally allowed. tint is "street legal" yep that's the tint colour with the driver and front passenger done as dark as legally allowed there and the back windows and back windscreen darker but nicely blended so it doesn't look weird.

when we had the windows tinted we had to take into account the sensory issues and visual impairment needs of our children. thankfully after discussing this with our holden dealer accessory department after already being quoted one price, they came up with an even better solution with darker tint and said they would do that at no extra cost. not only was i so incredibly grateful as it was something i did not expect but they understood completely...yep they "got it" as they have friends with special needs kids and they knew what that meant.

she comes with so much, things i haven't even heard of before and the fabulous thing is she's also done very low km's and that's always a good thing. she's settled in very nicely and we ♥ her to bits and even lance and grace...both with their learners permits have been allowed to drive her, something i initially said no too but this car is one to be respected and the kids certainly do that. they've both only driven her once each in the past couple of days but interestingly enough, they are more cautious, more alert and really appreciate and respect her....that says enough hey?!!!

the even more incredible thing here though is something much more you know we have 4 teens and 3 of them have autism...our youngest son isaac who is so disengaged from society has taken advantage of bill (the car) and just about everyday since we've brought her home isaac has come for a drive in it. whether it's been to drop grace of at her friends, pick up mr iggles (our rabbit) from the vet or just ask dad to go for a drive he has been really happy to do so. now it may seem weird to many of you but our son could barely cope with taking a step outside the front or back door and spends most of his time in a dark room on his xbox as his anxieties are just so high that he is incapable of much more. to those of you who "get it" then you will know that this baby step is huge and it means so much to us......yes a glimmer of hope!!!

the school holidays are nearing their end and i must say i'm not really looking forward to it. life becomes just so much more difficult when we're in a school term and particularly when your kids are really struggling and not being supported in anyway within the school system. but i haven't given up yet and nor will's just about putting my energy to good use in a different way and working round it but this time and finally with the help and support of a team from disability services to come on in and do the so called "negotiating" for us and work it from their angle.

anyhoo before i sign off i just wanted to share one more thing with you.... i'm getting closer to being able to share my awesome news with you. i still can't let the cat out of the bag yet...well i can, but i've chosen not too because i personally think this time i'd simply like to wait till it's all official and i'll just have to keep you all in suspense till the 22nd of july when it all takes place. but it's big...well big for me and very exciting.

ok i've waffled on long enough so till next time, take care and keep on smiling.
hugs chris xoxo