Shabby Miss Jenn

Sunday, 20 September 2009

happy 14th birthday maddison!

yes huge happy birthday wishes to our son maddison who actually turned 14 yesterday. ahhhhh a mother's quilt for not being able to blog earlier and wish him an awesome day on his actual birthday, although very much done in real life just not in bloggin' life, but stuff happens and no matter how well you try things just don't happen the way one would wish. another quiet birthday celebration and here at home. he was happy as he got an xbox game he wanted amongst other things but as soon as he saw it that was it.....he hid in his room playing it until he reached all levels in the ability he was playing in and then came out for tea...his choice and his fave....lamb souvlaki's with garlic sauce and a boston mud cake from our local cheescake shop. he had also asked if i could hire out saving private ryan for a week and he sat and watched that this morning with tim and i think the plan is to watch it everyday. i will have to purchase this one for him so he has it on hand when he wants to watch.

as you can see maddison has a passion... a very serious one just like most kids with asperger's syndrome do....he has always loved anything military/army/war related for as long as i can remember and simply managed to bring everything into it that somehow reflects his passion. he knows so much about his passion that even i find it incredibly amazing and never tire of it although he chooses many times not to talk (selective mutism) when he does he knows his stuff and i am once again gobsmacked by his knowledge and in particular all things WW2.

his latest mission in regards to his passion is the xbox games he plays that revolve around war and at the moment even that has to be WW2. the game he wanted for his birthday was IL 2 sturmovik - birds of prey as seen below although the rating on this is very different here in australia then what you see on the left corner which is 7+.

i have no idea how many games maddi now has for the xbox but it's getting to be quite a few....doesn't help when he passes the levels in one night then goes up an ability then passes the levels in one night and so on and so on. thankfully these games can be played online.

of course he also got a couple of t-shirts that are needed as the warmer weather starts...he has got taller, now towers over stephanie his older sister and has lost soooo much weight that where only 6 months ago i was struggling to buy anything to fit him in the large men sizing he is now into small mens. new wallet (army camouflage material), some cash and a new book - aircraft of ww2 by robert jackson which maddi just loves and another to add to his collection.

anyhoo that's it now until grace's birthday just 2 days before christmas and would you believe she's turning i'm still getting use to the fact that she is oh and did i tell you that she got her learner's permit for driving about 3 weeks ago now and is well on her way to gain her 120 hours of driving experience required and logged for when she turns 18 and can officially go for her p's.

life is full on still as usual but the good thing is we officially start school holidays tomorrow for 2 weeks and although we still have appointments and stuff like that at least the school runs for 2 weeks won't be necessary and so sleep in's and scrapping here i come.....well that's my hope and

ok that's it for another post....i so want to revamp this blog of mine....keep window shopping for new blog packages but just don't have the time to do anything at the moment. anyway it will happen....just like christmas which we are certain just think christmas will happen sooner. :)
outta here for now so till next we meet again take care and stay safe.....hugs chris xoxo

Tuesday, 15 September 2009

happy 18th birthday lance!

wow can you believe today lance turns 18 and as i look back over the past 18 years of where we've been, the journey we have have traveled thus far and how we've managed to get to this incredible milestone here today my mind boggles at all we have come through and i am so very grateful that God has been gracious with us. come with me as i reminisce just a little over the past 18 years but i'll go back just a little further so you kinda get the picture a little

tim and i were married on the 6th of september 1986 and this year marked our 23rd wedding anniversary. we were married for 4 years and wanted to start a family yet in 1990 about a year before lance was born tim and i were given some terrible news which was heartbreaking. without going into too many details because i certainly don't want to bore you to tears, i was told by my specialist that the damage and the scarring left behind from the severe endometriosis i was dealing with would pretty much leave us childless and i was told that i would not be able to have children. the specialist also informed me that even if i was too fall pregnant i would not be able to carry full term and i would lose the baby early....not the best of news to hear. now i do believe in God and i do believe in the power of prayer so that's what tim and i did....prayed for children but we also came to a harsh reality that if it were not to be then that was that. 8 weeks later i was given the good news that tim and i were expecting our first child and we were ecstatic.

it wasn't the easiest of pregnancies with 3 threaten miscarriages, many days in bed, trips to the doctor to make sure the baby was still alive and eventually having to resign my job but we got through it and on the 14th of september 1991 i went into labour. off to hospital as the contractions became more intense and closer and as things progressed there normally for a period of time it soon became apparent that things were not going so well in fact things would become complicated and i would have a fight on my hands trying to stay alive. somewhere in amongst the absolute agony that no drug was able to handle they realised that lance was positioned badly and it was causing stress. i recall quite clearly my near death experience while in labour, i recall when i stopped breathing and my body was completely paralysed, unable to move, my eyes unable to open, my voice unable to scream out, i knew that something was seriously wrong and this was it....i would have to fight to save myself and my unborn child because although i could hear everyone including tim panicking and asking for help i was not able to respond to any of it and i was slipping deeper and deeper into darkness and all i could do was call out to God to save me. that he did because then i saw a light in amongst all that darkness and i knew that although I was heading further into it i needed to move towards the light and come out of this alive.

i remember quite clearly as if it were just yesterday breathing again and being whisked off to another room where they could prepare me for an epidural and the birth of my child with more care. lance had still not turned and when the epidural was given and didn't work but paralysed the right leg instead of the lower half of my already exhausted body i knew we were still in for the fight because I was still in agony and as much as tim and i kept asking for a cesarean they kept saying they were doing everything they could. i must have lost consciousness somewhere along the line after that and coming to i recall them saying the baby had finally turned and just in time so it was now time to deliver. lance was born at 7.52 am that morning and although all his apgar scores were fine etc etc i knew something was wrong, i hadn't heard him cry yet nor would we for hours and when i asked why it all i got told was it was all the drugs in our system that had doped him up....but still i knew, i knew something was not quite right.

we watched lance grow, develop and reach his 1st year milestones incredibly early and I began to wonder if indeed there was any possibility that we may have a "gifted child" here. then that nagging feeling from his birth hit us big time because we started seeing some odd behaviours in lance and it all started with those few words he knew so well and seemed to understand the meaning of. then all over a sudden he wasn't able to say them and he seem to get "lost in translation" when he tried to talk and then the frustrations started as his speech progressively got worse and it appeared he was not able to process and understand pretty much anything anyone said as speech became more and more confusing. his tantrums and self harming started as well and by 2 we knew something wasn't right but because this was our firs child and I did not want to be labeled with "it's just the 2 year old phase" tim and i spoke to no-one about our concerns and by the time lance was 3 and things became extreme we knew it was time to see the doctor and express our concerns about lance. he in turn referred us to lance's paediatrician and after some time he referred us to early intervention who suggested that lance may possibly be autistic and because of his speech difficulties he would need to see a speechy. 2 years of speech and the speechy saying that his brain processes things back to front and wasn't normal, 2 years of early intervention and then closing the file saying everything was fine now that he was in school, became 15 more years of hell and misdiagnosis and trying to find out what was so different about our son because something was indeed not right.

lance late last year was finally diagnosed with autism. he has a severe speech, language and communication delay, learning difficulties, low average IQ, is unable to "adapt" well if at all, depression, severe anxieties, doesn't process much and then of course we look at all the symptoms that make for a diagnosis of autism which not only includes all of the above but many more i.e - sensory/tactile difficulties, taps constantly, monotone voice/tone, is very literal, is unable to read facial expression and understand them - both his and everyone else's, mimic's, mirror images people, makes up his own idiosyncrasies, has meltdowns, struggles severely because he can't make sense of the world that we live in, self harms and the list just goes on and on...oh and did I mention needs 24/7 care and support.

although the journey has not been an easy one with it's high and lows, it's negatives and positives, the intense daily struggles we deal with is a huge milestone because things could have been very different and without God's intervention, lance and i would not be here that i am certain of. if you have managed to read this far i hope you have taken something from my "memoirs" and i thank you for allowing me to share a little glimpse in to the world our family lives in.....the world of autism and even though there are daily struggles and there is so much to deal with, every morning my son wakes up is a miracle and one I am forever grateful for, every morning he comes in from his unit and i greet him with 'goodmorning lanciepoos" and he smiles his most gorgeous smile i know it will be alright!

so to my gorgeous boy who seemed to grow up so quickly and is now 18, happy 18th birthday lance, i wish you the very best of happiness and peace, i pray for easier times and things to become more stable in your life no matter how much help and support is needed, i pray for people to accept you for who you are, not for someone you are not nor can be and i am thankful that God saw us as worthy parents, to allow you to be born into this family so we could love you with every ounce of ourselves and all that is possibly human and even then so much more. we love you so much!!! xoxo