Shabby Miss Jenn

Friday, 26 June 2009

Sickness, too many appointments and school holidays!

wow i do believe that is the longest title that i have ever titled my post with.....in forever.....well just in the history of my blog anyways. so to begin with and as the title suggests the ickies have hit here at home and we are so not lovin' it. some of you may know that grace has been sick for quite a few weeks now, started off with tonsillitis, then turned into a viral infection which of course turned into a nasty case of glandular fever and so almost 2 weeks ago we had her back to the doctors who told us to get her straight up to the hospital who in turn got her straight on to a drip to rehydrate her and fill her system up with a cocktail mix of drugs as her tonsils had swollen to the point she was having difficulty swallowing and breathing. they wanted to admit her but after being on the drip for a few hours and given some more meds to take home they thought it best for her to be more comfortable at home then in a hospital ward and of course more time off school and work. she was put on a course of steroids and an anti inflammatory as well as some goo mixture they make up to help relieve and numb the throat which in itself is just pure magic. she is getting better although some days are better then others and doc did tell us that it would probably be like this for the next 4-6 months but hopefully the next 4-6 weeks would see an improvement.

i have had some virus/flu thing hit me hard as well these past 3/4 days and with it came a terrible cough and fever but today i have felt better for the first time since it hit so i am pleased with that.

steps has been hit with something as well a bit of a cold and a little tummy bug as well and today she seems to be fairing well with it and has had a good day today. she has been having a bit of a hard time at school lately and her psychiatrist and her psychologist are working hard with her and they are also referring her to a different department but one i am so not ready to tell the world about yet.

tim has been off to have a few blood tests....well quite a few and goes back to the doctor in a few days to see the outcome of those. he hasn't been travelling all the best for some time and doc decided it was time to take further action. so a little more waiting there.

maddi is going through a pretty rough time he has started injections in both eyes now and as well as being monitored all the time it will also be ongoing so that has been a bit of a shocker for all of us. specialist did tell me last visit that as much as this is working for now and the fact that had to do something, they don't know the long term effects nor will they know how long each treatment will last and as he mentioned to me they are trying to avoid maddi coming in every week for this. whoa!!!!

lance is ok although he did have a rather large meltdown on monday but then the trigger point for that may have been the fact that we have introduced a new support worker for him and although it is early days and i have been onboard the only other time this support worker has spent time with us, so far a meet and greet monday and then thursday was over at righteous pups australia, we are hoping this to be a positive....it's just going to take time and lots of it as lance does not cope with change and/or strangers. we received results of another assessment for him this week which was his speech and language and i must say tim and i, although we knew, are having a hard time dealing with the reality of that and the fact that there is such a severe delay there in most of the sub categories and not only does it explain so much which can help all of us but makes us realise that reality is lance does not understand most of what we say and nor can he express himself very well at all.

ok so remember part of the title mentioned about too many appointments.....people don't really believe it when i say i am flat out with them and the impact it has on one individual trying to keep it all balanced so guess what i'm going to tell you how many i had for the month of may alone, yep and it's pretty much like this every month. ok so for may i had 27....yep you read right 27 appointments i had to deal with. on top of that i also had to deal with the multitude of phone calls and many of them to professionals and service providers which of course adds another whole new lot of layers because most phone calls are between the 30 - 90 minutes timing and full on. then there is the running around....yeh remember i am a wife and mum too so grocery shopping, general shopping, paying bills, running errands, house hold chores (although i must give tim credit here as he usually does the laundry, the dishes and whatever else i can manage to throw his way), gardening, cooking, pets, paper work and trust me there is stacks of that when you have kids with serious disabilities, being a taxi and of course keeping the family life balanced (hahaha) and trying to keep it close to anything that may possibly resemble normal. now just to tell you a little story....my mum rang me up this week and wanted to know why i had not been in touch or how come i had not visited her home for the past few weeks....mind you i am still trying to come to terms that this women just remarried last month only 7 months after dad died but ok fair enough....i then told her how busy i was...still didn't sink in until i told her how many appointments i had for the month of may.....yay a light bulb went on and something must have registered because she said really 27, gosh chris.....yeh gosh mum that's me alright.

yay we are officially on school holidays and i am stoked, i am looking forward to a little less rushing and i am also making sure i don't book to many appointments while we are on holidays although some are just par for the course but some i have control over and i get to organise. i am looking forward to sleeping in and when i have been as sick as i have been with little sleep over the past few nights then yes bring them on. i am looking forward to going to the pictures and using all those free movie tickets we have been graciously given by carer support services. i am looking forward to shopping at myer with my girls as well because grace gave me a gift certificate for my birthday from there. i am looking forward to a little scrapping as well both paper and digi and finishing off those 4 little 8x8 canvases i started on and have not had a chance to finish. i am looking forward to a little garden tidy up and pruning the roses this year and transplanting a couple of them. but most of all i am looking forward to being with my hubby and kids....no stress or pressure....late nights...late mornings as we wish and as we can manage.....now it's not a perfect holiday but maybe it just a little closer to normal for us.

last but not least i will leave you with a lo i recently did......... i don't usually work with purple....as much as i don't mind the colour, scrapping with it is another thing, but i love this and i love the papers thanks to chantilly lace and her recent RAK :)

Credits:
Papers - Vintage French Roses and What A Mess (brights) - Chantilly Lace
Worn Overlays - Something Blue Studios
Dirty Jeans Photo Action - Paint The Moon
Frame, Mesh and Screw - Weathered Frames - Catherine Designs
Rusty Old Frame - Grab Bag #1 - SMJ
Get Punched Alpha - Nikki Beaudreau
Black Polka Ribbon Wrap, Buckled Ribbon Wrap and Beaded Flower - Perfect Day - Paint The Moon
Everything else - Spring - Natali Design
Font - Stamp

ok so i'm outta here for now and off to do some much needed scrapping long over due for Bella Scraps MagazineTM due to me being icky these past few days. take care, stay outta trouble and for those of us on school holidays...enjoy and stay sane! hugs xoxo

1 comment:

Ann-Marie said...

CHRIS!!! hey chicky it's been so long. I have been so busy - so much going on. I decided to take 5 and catch up on your blog - so sorry to hear you all have been sick. Life is complicated enough without throwing the ickie sickies in too LOL! We been there and done that. LOVE the LO's of late too :) Take care and remember I am always thinking of ya even if I am not constantly in touch :) mwah xox