life has been pretty full on this past month...ahhhh who am i kidding life has been really hectic, quite chaotic and in the mix of it all there has been some really tough stuff to get through.
you all know lance had an operation about 2.5 months ago and we were having a nurse out everyday to tend to his open wound? well for about 2 weeks some silly doctor thought it would be good for a nurse to pop out once every 2 days.....that really messed things up and now nursing is back out everyday to tend to his open wound. we have been back to clinic 3 times now and for the past 6 weeks his wound has not been healing whatsoever...nope not closing and pretty much causing more trouble for the poor kid.
anyway last clinic trip the 2 doctors that saw us are quite concerned about his wound and we go back next week to see whether or not they go back in for more surgery...this time to explore and see what's going on or if it has healed by then he will be placed on the waiting list for the next operation which will be more of a major one. either way we still have one more operation to happen they just can't to the next major one till this darn thing heals up.
lance has managed real well...mostly! there has been the odd moment and i believe that as of this past week his patience has now worn fairly thin and he is more anxious waiting for the nurse to come out each day and simply can't focus on anything else until they have packed and padded the open wound...and left! like i said poor kid!!!
grace has finished school....yes finished for good with the exception of a possible tertiary education in the next year or 2 she is done....wow all those years and it's all over with. anyway considering our family dynamics and her own stress load i think she did fairly well. results come out next month and it'll all depend on what her enter scores are as to whether or not she gets into uni or takes a gap year and gets a job.
steph has just finished exams and finishes school tomorrow. her next path in life is to attend senior secondary and we are just finalising those details now. i have my concerns about that....ahhhh what the heck...i am really worried about her transition and how she is going to manage because of her autism, depression, anxiety, learning difficulties and visual impairment. i have spoken to the school on a couple of occasions and am just waiting for a phone call from one of the assistant principals so we can get together with the disability manager and disability senior officer to see what supports they can offer steph to help her manage her next leap into the mainstream school system.
isaac is now out of school full time, i know i mentioned this in my last post and since then he is doing quite well. that is much better then when he was in school on a very modified program. his anxieties for the most part are under control although he still can't leave the house with the exception of the occasional drive to take another kid elsewhere but that's good and anything else is simply a bonus and you know what?...for the moment i'm not worried at all because we're able to have some much needed breathing space.
ok there is so much more i could say but i won't however i'll leave you with a couple of pics i took recently.
spider web in front garden
charmaine and grace
charmaine and grace
grace's boyfriend jo and the girl herself
ok outta here, take care and let's hope the next post is a little sooner then this one....far too much time in between. hugs chris xoxo